Rebecca Monteleone, Ph.D.
education
Ph.D. Arizona State University, Tempe, AZ., Human and Social Dimensions of Science and Technology Graduate Certificate, Gender Studies, 2020
M.A., The University of Kent, Canterbury, UK, Intellectual and Developmental Disability (Social Policy, Sociology and Social Research), Fulbright Postgraduate Scholar, 2016
B.A., The Ohio State University, Columbus, OH, Disability Studies, 2014
research and teaching interests
Disability and Technology; Science and Technology Studies; Crip Technoscience; Medical Technology; Feminist Disability Studies; Qualitative Research Methods; Intellectual Disability; Genetic Testing; Engineering Ethics; Global Issues in Disability Studies; Emancipatory and Participatory Research Methods;
publications
books
- The Double Bind of Disability: How Medical Technology Shapes Bodily Authority. University of Minnesota Press. In Press.
- Disability and Social Justice in Kenya: Scholars, Policymakers, and Activists in Conversation (anthology co-edited with Nina Berman). University of Michigan Press. 2022.
selected articles and chapters
- "Complexity as Epistemic Oppression: Writing People with Intellectual Disabilities Back into Philosophy" in Hypatia: A Journal of Feminist Philosophy. DOI.
- "'It's Not Easy Being Around That Kind of Sickness:' Intellectual Disability and the COVID-19 Pandemic. Disability Studies Quarterly, 43 (4). DOI.
- With Martin Perez Comisso and Elma Hajric. "Cyberpositionalities: Sociotechnical Relationships in the Digital Age." Techne: Research in Philosophy and Technology. DOI.
- With Joana Soldado-Magraner, Alberto Antoinietti, Jen French, Michael Young, Nathan Higgens, and Denis Larrivee, "Applying the IEEE BRAIN Neuroethics Framework to Intra-cortical Brain-Computer Interfaces," in Journal of Neural Engineering, 21 (2).
- With Ally Day, "Wearing Danger: Surveillance, Control and Quantified Healthism in American Medicine," in Who is FemTech For? (edited by Lindsay Balfour, Palgrave MacMillan).
- With Noeline Prins, Joana Saldado-Magraner, Joanne E. Nash, Michael Young, and Laura Cabrera, "Reexamining the Ethical, Legal, Social, and Cultural Implications for Cochlear Implants through a Novel Neuroethics Framework" in Proceedings of IEEE International Symposium on Technology and Society.
- With Salah Hamdoun, Teri Bookman, and Katina Michael. "AI-Based and Digital Mental Health Apps: Balancing Risk and Need" in IEEE Technology & Society Magazine. 42 (1), 25-36. doi: 10.1109/MTS.2023.3241309.
- With Amy Silverman and Beena Raghavendran, "Intellectual Disability and Epistemic Justice in Journalism: Reflections from a Pilot Project" in Canadian Journal of Disability Studies.
- With Geovanna Rodriguez, Vidya Munandar, and Jenn Bumble. "Blurring the Boundaries: Reflections from Early Career Faculty during the COVID-19 Era" in Intellectual and Developmental Disabilities, 59 (1), 1-6. doi: 10.1352/1934-9556-59.1.1
- "Forgotten Publics: Considering Disabled Perspectives in Responsible Research and Innovation" in Journal of Responsible Innovation, 7 (Sup 1). https://doi.org/10.1080/23299460.2020.1831366.
- With Salah Hamdoun, Katina Michael, and Terri Bookman, "Assistive Technologies for Greatly Improved Quality of Life for People Living with MND/ALS" in IEEE Consumer Electronics Magazine. DOI: 10.1109/MCE.2020.3035523.
- With Katina Michael, "'Microchipping People is a Bad Idea': An Interview with Andreas Sjostrom" in IEEE Technology and Society Magazine,38 (2), 18-21. DOI: 10.1109/MTS.2019.2913066.
- "Beyond Participation: Empowering People with Disabilities in Research and Design" in Technology and Innovation 20: 133-139.
- With Mateo Pimentel, A Privileged Bodymind: The Entanglement of Ableism and Capitalism" in International Journal of Economic Development 12/1: 63-81.
- With Rachel Forrester-Jones, "‘Disability means, uh, dysfunctioning people': A qualitative analysis of the meaning and experience of disability among adults with intellectual disabilities" in Journal of Applied Research in Intellectual Disability 30/2: 301-315.
- "Employment for All: United States Disability Policy" in Tizard Learning Disability Review 21/3: 154-161.
selected digital media
- Telling It Our Way: Stories from the Everyday Lives of Self-Advocates with Intellectual
and Developmental Disabilities (Podcast; WGTE; Co-host and producer).
- *Winner, 2025 Media Award, American Association on Intellectual and Developmental Disabilities
- *Winner, 2024 Touchstone Award for Podcasting, Toledo Press Club.
- What Makes Writing More Readable? (with Jamie Brewer), The Pudding. [Link]
- Plain Language Summary and Translation, Demystifying Disability: What to Know, What to Say, and How to be an Ally by Emily Ladau [Link]
- *Note: Plain language uses clear, familiar language and simplified sentence structure to make professional writing more accessible to more people, including people with intellectual and developmental disabilities.
- Plain Language Translation; State of Denial by Amy Silverman, ProPublica. [Link] (Finalist for Shadid Award for Journalism Ethics)
- *Note: Plain language uses clear, familiar language and simplified sentence structure to make professional writing more accessible to more people, including people with intellectual and developmental disabilities.
- Overview of the Americans with Disabilities Act Easy-To-Read Booklet, Mid-Atlantic ADA Center. [Link]
- Provide the Pencils, Don't Write the Story: Recommendations for Young Researchers, Opening Pathways Partner Toolkit. [Link]
- Have We Crossed the Rubicon? Disability and Contemporary Eugenics, Eugenic Rubicon: California's Sterilization Stories. [Link]
selected fellowships and awards
- Research Awards and Fellowships Program, University of Toledo
- Christine Mirzayan Science and Technology Policy Graduate Fellowship
National Academy of Sciences, Engineering, and Medicine - National Science Foundation Integrative Graduate Education and Research Traineeship
Alliance of Person-Centered Accessible Technologies - Fulbright Postgraduate Scholarship
US-UK Fulbright Commission, University of Kent
Editorial Experience
- Intellectual and Developmental Disabilities. Consulting Editor, 2021-present.
- Journal of Science Policy and Governance. Associate Editor, 2018-2020.
