College of Nursing

Center for Nursing Research and Evaluation

Caring~Web: Web-based Support for Stroke Caregivers

Linda L. Pierce, PhD, RN, CNS, CRRN, FAHA, FAAN - The University of Toledo
Victoria Steiner, PhD - The University of Toledo
Amy Govoni, MSN, RN, CS - Cleveland State University

Nearly 5 million Americans live with the after-effects of stroke. There are 700,000 new persons with stroke each year at a cost for care of $57.9 billion annually. Most persons surviving a stroke return home after initial rehabilitation treatment and are cared for by family members, usually women. Family members [relatives and friends] manage and/or influence many aspects of care for the person with stroke, e.g., helping with activities of daily living, scheduling appointments with healthcare providers, providing physical care and emotional support, etc. The profound changes that can accompany stroke create considerable challenges for those individuals and their families. The National Institutes of Health have pointed to a need for research using innovative technology to support family caregivers.

Using Friedemann's framework of systemic organization as a guide, this study investigated outcomes of Caring~Web©: a Web-based, in-home intervention of support for caregivers of persons with stroke in northern Ohio and southern Michigan during the first year after rehabilitation treatment.

Caring Web Study Final Report

Quantitative Results

Qualitative Results

Publications Resulting from Stroke Research

Dementia and Caregiver Research

Linda L. Pierce, PhD, RN, CNS, CRRN, FAHA, FAAN - The University of Toledo
Victoria Steiner, PhD - The University of Toledo

Several studies have been completed with a focus on web-based support/education for caregivers of persons with dementia and/or cognitive disorders.

In 2013, costs of caring for people with dementia in the United States (U.S.) were between $159 billion to $215 billion, and those costs could rise dramatically with the increase in the numbers of older people in the coming decades.  As the U.S. develops new healthcare financing and delivery models focusing on the integration and coordination of care, it is essential to recognize that for many of these people with chronic health problems such as dementia or cognitive disorders, family caregivers are the primary care coordinators in the community. These caregivers cannot be expected to do more, and to play an integral role in these new models, with too little support and education.

Publications Resulting from the Dementia/Cognitive Disorders Research

For more information contact:
Linda L. Pierce, PhD, RN, CNS, CRRN, FAHA, FAAN
E-Mail Address: 
Office number: (419) 383-5852
Fax number: (419) 383-5875


Last Updated: 6/26/15